Saturday, October 23, 2010


The doctors believe that Cole had Multicystic Dysplastic Kidney Disease, based on the results of his autopsy. I found a really helpful website about MDKD (Click Here). If Cole had only had one multicystic kidney, he more than likely would have survived. But unfortunately, both kidneys were filled. In addition to having 2 kidneys filled with cysts, Cole's left kidney was also significantly enlarged. Our poor baby didn't just have Multicystic Dysplastic Kidney Disease, but also reverse diastolic flow in the cord (blood moves back toward the heart when the heart relaxes), which meant that Cole wasn't getting enough nutrients.

There is a slight chance that Cole had Polycystic Kidney Disease, which is a genetic disease (and would NOT be a good disease to have). The doctors are going to do ultrasounds on my kidneys and Mr. Howard's kidneys in order to determine whether or not we have cysts in them (and are unaware...apparently it's possible to have cysts and not have any symptoms). This won't definitively tell us anything, but if neither of us have it, it will either mean we aren't carriers or we carry the recessive gene. If either of us has cysts in our kidneys, it will mean we are carriers of the Polycystic Kidney Disease (PKD) gene.

Both Mr. Howard and I are feeling like the results were very inconclusive, but we were happy that they are going to do ultrasounds on our kidneys.

All of this means that we have a 25% chance of having another child with MDKD, which is clearly beyond heartbreaking news! I know that those aren't horrible odds, but I don't know if I can go through this again. How would I survive?


Lindsey said... Best Blogger Tips[Reply to comment]Best Blogger Templates

praying you aren't carriers. hoping God continues to give you peace. Hope youre having a great weekend!

courtney said... Best Blogger Tips[Reply to comment]Best Blogger Templates

If and when you want to talk about this...I would love to talk to you about having a child where you know there is a larger than typical risk of something going on. I too pray you aren't carriers and your ultrasounds come back totally normal. Let me know if there is anything I can do to help you.

Related Posts Plugin for WordPress, Blogger...