Wednesday, November 10, 2010

Some Good News with Some Bad

The Good News: Mr. Howard has no cysts in his kidneys! While I do have some cysts (two small ones), they are not consistent with Polycystic Kidney Disease. Generally by 30, if I had PKD, I would have at least two cysts filling both kidneys. Two tiny cysts in one kidney are not reflective of someone my age with PKD. This clears us from Autosomal dominant polycystic kidney disease.

The Bad News: While they were there doing ultrasounds, they found an angiomyolipoma (a benign tumor) in one of my kidneys. People with these generally have tuberous sclerosis (a disease that can affect a lot of areas), but they do not think I have that disease based on a lack of any other symptoms. So, they have scheduled me an MRI to check on it and then they will monitor me every year to see if the angiomyolipoma is growing or getting worse. There are some concerns because my paternal grandmother had kidney cancer, so of course they'd like to monitor me and make sure that this tumor is static and isn't affecting anything else. In the event that it is growing or it causes hemorrhaging, I will have to have it surgically removed.

The Indifferent News: The lack of cysts in the kidneys still does not clear us from being carriers of PKD. It is still possible that we have the Autosomal recessive polycystic kidney disease. HOWEVER, the doctor's feel comfortable calling what Cole had Multicystic Dysplastic Kidney Disease (and not PKD). We have a 25% chance of conceiving a baby with kidney disease.


Lindsey said... Best Blogger Tips[Reply to comment]Best Blogger Templates

I will be praying for the 75% chance that you will have a healthy baby #3! And praying for no growth of any cysts on your kidneys. Always thinking and praying for ya...thanks for the update.

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