Saturday, July 2, 2011

NICU

It is difficult to keep track of everything that is coming at us. I wanted to document some of the things that are keeping the babies in the NICU. We were able to meet with one of the pediatricians/perinatologists working with both babies yesterday to get a status update. It is looking like Isabella might be able to go home with us when I am released tomorrow. Aiden's trip home is unknown at this time. I asked for a best guess (a week? a month?) and was told right now they can't give me one, but she said "OH GOSH. I HOPE he's not here for a month!" So I don't think it's going to be a terribly long stay. We have been offered boarder status (when I am released we can still stay here as boarders so we have access to the twins all day/night) at the hospital, but we haven't gotten much information about that yet

Isabella

  • Low/Fluctuating Blood Sugar Levels (getting special formula)
  • Low Body Temperature (monitored under warmer)
  • Administered antibiotics because twin brother might have infection (had IV placed July 1st)
This photo kind of looks like my breast is hanging out (hehe). It's not. It's Isabella's butt. We were doing skin to skin while I fed her a bottle. We're trying to get her to nurse - so we're taking baby steps by feeding her with a bottle skin to skin.

Aiden
  • Heart Murmur on June 30th (echocardiogram ordered); July 1st it seemed the murmur was gone. Haven't received results from echocardiogram.
  • Low/Fluctuating Blood Sugar Levels
  • Blood in his Stool (began July 1st) - ultrasound was administered July 1st. Haven't received results yet.
  • Elevated White Blood Cell Count (administered antibiotics for possible infection) - IV placed June 30th
  • Elevated bilirubin levels July 1st (could potentially have to go under the lights July 2nd)
 Aiden is struggling a bit more with nursing. His suck isn't great and because his bilirubin levels are rising, it isn't safe for me to only give him colostrum. He needs proteins from formula. It's easier for Mr. Howard to feed him because I get sad.

I have soo much to share about the NICU and my experiences. It's all happening so fast that I don't feel there are enough hours in the day. But yesterday I lost it. My mom was with me so she was able to take over, but I sobbed. It's sooo hard seeing your baby cry and get pricked and poked and bleeding. It's even harder when all you want to do is scoop him up and take him with you and you have **ABSOLUTELY WONDERFUL/KIND/LOVING** NICU nurses who you know are incredibly knowledgeable constantly telling you you're doing something wrong. I changed the diaper wrong. I'm not breastfeeding correctly. I didn't wash my hands well enough. And they are only doing it out of the most loving place. I have never had a preemie. And I've certainly never dealt with a newborn in the NICU. So it's a big learning curve. Big!!! Add on top of that the fact that I am seriously, seriously hormonal. I want to emphasize that the nurses are never mean or accusatory or rude. They are soooooo loving. But they are strict. Their rules are strict (all for good reasons) and it's just hard. With Connor, he was born and he was ours. Isabella and Aiden were born and I have to share them with the 10 doctors and nurses who care for him 24 hours a day. I don't decide when they eat. I don't decide WHAT they eat. I don't decide when to change their diaper or even when I get to hold them. They decide and tell me.

5 comments:

Courtney said... Best Blogger Tips[Reply to comment]Best Blogger Templates

hugs my friend. I have been there, but I do not know exactly what you are going through because we are different people. Just hold onto your faith and your family...they will get healthy and awesome!

Nina said... Best Blogger Tips[Reply to comment]Best Blogger Templates

All our prayers for...patience, positivity, and peace. They are beautiful. : )

Jen said... Best Blogger Tips[Reply to comment]Best Blogger Templates

I don't know if it helps you feel any better, but for me Mason was in the special care nursery first and that was all I knew. I can imagine how difficult it is having it the other way around. Ellie was with me the whole time and I think it would have been scarier to have it reversed. I agree with you on how hard it is to see them go through what they do. I remember the little IV and all that. I am thinking of you and sending you strength and know that your visits to your babes are precious and your time there it so treasured by them. I remember walking to visit Mason what seemed like all the time. I got to know which nurses I liked the best and which were helping me learn the best. I still hold some of what they shared with me dear to my heart. I wish you the best through this challenge.

Daddy's Dream ~Mommy's Miracle said... Best Blogger Tips[Reply to comment]Best Blogger Templates

I feel for you.. I know exactly how you are feeling. Hang in there...it really does seem to go fast once you have them home and look back at your time in the NICU. Praying for you all!

The Vaught's said... Best Blogger Tips[Reply to comment]Best Blogger Templates

My heart goes out to you! When we had our twins we were able to take our little girl to the hotel with us when we were released (we lived 2hours from the hospital, and I couldn't be that far away), but our little boy had to stay in the NICU so I feel your pain. Just try to remember they are going to get him all ready for you to take home and you will feel comfortable knowing he is ready. Praying for you!

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