Wow! This week has been rough. And it's only the end of Wednesday. There are times when being a working mom is harder than I ever could have imagined and this week is one of those times. At this point in my life, right in this moment, I wish I could pack up my teacher stuff and stay home with my precious babies. Sometimes the guilt is so overwhelming. Sometimes the managing of appointments is overwhelming. Sometimes when I'm working I'm thinking about everything I need to be doing at home and at home I'm thinking about everything I need to be doing at work. I guess just being a mom is overwhelming! How many days until Spring Break, again? Whew!
Please tell me I'm not the only one who feels like that.
The babies had a nephrology appointment today and all went well. I got a lot of answers to some questions I've had on my "to ask" list too.
He has one functioning kidney (his right). It is the perfect size. His left kidney is smaller than it should be and completely non-functioning. He'll need another ultrasound at 1 years old to ensure all is well. But then he will not need any more appointments forever unless something is wrong. He will be able to play football if he wants (he'll have to wear special padding and there are greater risks depending on the position that he plays). He will not be able to ride a motorcycle or race motorcross. I'm completely okay with that, by the way.
Her duplicated ureter did not show up on her ultrasound, but we knew that was a possibility (given the teeny-tiny size of her kidneys). It still doesn't mean that it isn't there or that it isn't something we need to watch. She'll have another appointment at one-years-old and then one at two-years-old. If both ultrasounds don't show hydronephrosis (see picture below for what it looks like), then everything should be good and she won't need another appointment forever.
One of the questions I had was how they know it isn't polycystic kidney disease (PKD), instead of multicystic dysplastic kidney disease (MCDK). Dr. Orloff explained that PKD is in both kidneys (neither Aiden, nor I fit that profile); PKD cysts also come from different parts of the kidneys. You won't see that in an ultrasound, but in Cole's autopsy they should have been able to tell that. More than likely the MCDK is hereditary and so more than likely Aiden will pass the condition on to his kids. But it is so rare that it occurs in two kidneys (1 in 10,000) that it shouldn't really majorly affect his life.