Saturday, December 21, 2013

An Overdue Update on Aiden's Kidneys and Health

I received a sweet email from someone recently saying that she is having a baby who has multi-cystic dysplastic kidney disease. I would say about 4-5 times a year, I get an email or facebook message from someone, saying they found me by googling MDKD. It always breaks my heart that other Mamas have to go through that, but I value the friendships and hope that others who are earlier in the process can get hope from Aiden's story.

Pictured Above: Mr. Howard and Cole September 17, 2010
For those of you who are new to my blog, I had a beautiful little boy named Cole who passed away, from two multicystic dysplastic kidneys in September of 2010. Then, a few months later when I was pregnant with twins, we discovered prenatally that one of my twins had one multicystic dysplastic kidney. It was a rollercoaster of emotions, lots of prayer, and eventually answered prayers. We weren't sure if his other kidney would fill with cysts and we spent the pregnancy petrified that we might lose him too. We've been riding this journey of MDKD for three years and I can't even believe how far we've come.

When I was replying to the email I received, I realized I haven't given an update on Aiden in a long time on the blog.
 Aiden is doing wonderfully. There is absolutely no sign whatsoever that he has any renal problems in his healthy kidney. I mentioned in a previous post, that in the last renal ultrasound we had on Aiden, his left kidney was completely gone (more than likely it's still there somewhere, shriveled up, and undetectable anymore). His functioning kidney has increased in size and has taken over the function of the left (isn't that amazing how that happens?). We're at the point now that we don't have to continue to see a nephrologist multiple times a year.
 Aiden will live his life with only one functioning kidney. Twenty years ago this may have meant he wouldn't be able to do any contact sports, but today, the recommendations have changed. He will be able to do almost anything his siblings can do (with the exception of riding a motorcycle and boxing - which, for the record, his siblings will ALSO NOT be allowed to do. Ha!). He may need to wear a kidney pad (for certain sports) or he may just be limited in the number of contact sports he can play, but when the time comes for that, we'll have to do an evaluation to determine what will work for him and his health.
He is just a VERY loved, adorable, two-year-old with such a sweet heart who loves his siblings, cuddling, his blanket, stuffed kitty, cars, tractors, trains, and cereal! We couldn't be more blessed with his health.

6 comments:

Mrs. Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

It is such a miracle one kidney can work for two. I'm also not a fan of my son playing severe contact sports, so I would use that one kidney for everything!! Only flag football, son! No racquetball, how about some ping pong instead?? ;)

Mrs. Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

I am also petrified of contact sports in general!! The hard one will be water polo, because that was my hubby's sport in high school and it is BRUTAL!!! He used to come out of the water covered in scrapes, bruises, torn swimsuits, and blood all over his body. It's crazy! And I don't really think you can wear a kidney pad in the water. Yikes!

Mrs. Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

Sweet Aiden! How amazing the other kidney can work for both, what a blessing!!!
Watch out for soccer too, those boys are rough!!!

J Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

Isn't it amazing?? Yes, I completely agree about soccer too!

J Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

Love you <3
So happy he is doing so well.


My grandma only had 1 kidney her whole life! :)

J Howard said... Best Blogger Tips[Reply to comment]Best Blogger Templates

I never knew that!!

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